By Cure HHT, Special for USDR
Roughly 1.4 million people across the world are born with Hereditary Hemorrhagic Telangiectasia (HHT), a genetic blood vessel disorder that causes unexpected and extreme bleeding, leading to serious health complications or death.
The Virginia Regional Network Alliance, a group under the Cure HHT umbrella, is hosting Dr. Raj Kasthuri, Director of the UNC HHT Center for Excellence, on Jan. 24 to discuss managing symptoms and the latest in research.
Groups like the Virginia RNA are designed to give individuals and families an opportunity to share personal experiences, knowledge of the disease and strategies for quality of life. It’s about learning you are not alone, without help or hope.
Time: 1:30 p.m. to 3 p.m.
Date: January 24, 2015
Place: George Mason University — Johnson Center Library
4400 University Drive, Fairfax, VA 22030
For more information or to organize an interview contact Cure HHT Communications Manager at lauren.linhard(at)curehht(dot)org.